Friday, April 30, 2010

What to say, what to say...

Well, we're still here, for one. James has been vomiting early in the morning with each over night feed. It seems to be getting later, so maybe he's getting a little better. We're trying a couple of things but one at a time. He still refuses bottles unless he's asleep. He's eating more real food than ever before, which is fantastic, but it's not enough to live we're still here. We have toyed with the idea of getting him to the inpatient therapy at KCRC (Kluge Childrens Rehab Center) but not everyone is convinced that is the best thing since he has been through so much recently. Part of me wants to get him into it in the hope that he really starts eating, and another part of me wants to burst into tears, run to the car, reinstall the car seat (forward facing), and race home. But I won't, don't worry. I would have been fine if we hadn't talked about going home first, but I started dreaming about Mother's Day at home and a makeup Easter Egg Hunt. Still totally might happen, but in the words of James, "I dunno." (shoulder shrug--thanks Tara. lol) We took James off the TPN sooner than planned because it can slow gastric emptying too. But now we're operating on about 600 less calories per day, so that makes me nervous too. I just don't want to go too far in the wrong direction. But he is being carefully monitored here, so I'm sure they won't let that happen.


  1. Shoot....when that little muncher gets home I'm going to give him a second Christmas!