I have been SO excited recently. So. Excited. I haven't even posted anything because I was waiting to make a post about the latest test results. Two weeks ago I got the call that the results were back, and that I had to wait two weeks for the phone appt where I could hear about it. Sigh. But okay. I took the first available appointment, of course.
Now here's the thing: I didn't go so far as to think this was going to be a cure-all. But I did think we were going to develop A Plan. A really good one. And maybe we'd reach a few conclusions...
I sort of hoped so much to the point that I thought maybe it would help form, not the end of or journey certainly, but something to begin wrapping up part 1 of publishing this blog, to hopefully help other parents out there. (Cause nothing makes us feel better than reading about other people's pain and struggles.)
And this still may happen...The Plan.
However....apparently no one in the office out my appointment into their computer. So while I organized Tom to take the kids to school so I could have a phone conversation that didn't consist of "who are you talking to?", "what are you talking about?", "why did you say that?", etc etc in the background....they didn't have their shit together. First they wanted me to reschedule for Thursday, which I can't do. Then they said they'd gather up as much as they could and I should call back in 7 minutes. Apparently it takes 7 minutes. Fascinating.
Anyway, I should have just waiting cause I only got partial info. Dr Mumper didn't have all the information in front of her cause...turns out it does take more than 7 minutes to get all the labs in one place. So she went over what she had, but without the rest of it in front of her, it didn't tell us much. So I'll be getting an email and a letter soon.
I was seriously pissed when I hung up. Tom got an earful of how I feel about the medical community at large. But now I'm just resigned to waiting. Again.