Wednesday, January 9, 2013

New York Bound

Or maybe it's Canada. Either way, it's up there. In January. You may even see us in an episode of Ice Truckers. In a Prius.
Just kidding. We're totally not driving the golf cart.

Um, so anyway, we've gone rogue. We've gathered all hospital records and are driving to Black River, NY tomorrow to the NNY Autism Center. They want to help and since no one else does, we're road trippin it. There are two clinics that treat our only current avenue. NIDS. Fascinating stuff. Google it. Or go to

To put it very very briefly, there is evidence that what we all think of as autism, or spectrum disorders, or ADHD, or SPD, is not. It's viral, and that causes autism like symptoms, in which GI issues are very prevalent. It's a kind of autoimmune dysfunction, which we have really always wondered about. Most importantly, it's treatable. It takes a long time and a lot of effort, and we aren't really sure if or how it's going to work. But at least they want to try. They will be doing a ton of labs as well as looking at the bajillion labs their poor fax machine spit out this week and there are dietary changes, antiviral meds, environmental allergy consults, and so on an so forth. It's a long process of figuring out the different sensitivities and calming and regulating the immune system and the body as a whole. And so with literally no other alternative, we are gonna try it! And we're pretty excited about the possibilities, because a lot of it makes sense and just fits. But as always, we are cautiously optimistic for now.
I give total credit for learning about this to my friend from James' school who will be taking her son to LA to the other clinic in a few weeks. It will be very interesting to see the two very different kids work through all this and see what the outcome is. Prayers appreciated for both of them! I look forward to reporting back, IF we can get there. I've already been cautioned by the clinic to pull over if there's a whiteout. Right....

:) This has no significance. It's just funny.


  1. "We wait in hope for the Lord; he is our help and our shield. In him our hearts rejoice, for we trust in his holy name. May your unfailing love be with us, Lord, even as we put our hope in you."
    Psalm 33:20-22

    And please forgive my sister for locking her kids in the kitchen cabinets...she's under a lot of pressure:-)

  2. This is SO exciting, prayers for success!!!!