We are at my parents and while it is not home, it's a far sight better than the hospital! After the first night when our TPN supplies arrived with NO INSTRUCTIONS WHATSOEVER!!!, I think I've got it down. It's nerve wracking to have to inject all the additives to the bag, spike the bag, hook it all up, keep everything sterile, not send anyone into cardiac arrest and whatnot. I may not be the smartest person in the world, but I'm definitely not the dumbest. And presumably they send all kinda of people home with this stuff. It's a sort of comfort...hmmm.
Anyway, we meet with GI next Thursday and, again, presumably they will have the final test results and, hopefully, some sort of direction. Please pray for an answer! A treatable and/or curable answer if we are allowed to be picky.
Here's what we've been up to!
Facetiming with Daddy. We miss him so much!
As usual, there are no words. Who's daughter is she???
Sweetest boy. Kids are amazing.
Medical takeover of my poor mom's pantry