Thursday, August 9, 2012

Home away from home

I actually had a big ol thought provoking post written out yesterday, but when I went to stick a video on it, the whole thing crashed and disappeared. Sooooo, that was about the extent of my motivation. Instead I'll paraphrase and pop up some functional pics and videos because a picture is indeed worth just about a thousand words. :)
We are at my parents and while it is not home, it's a far sight better than the hospital! After the first night when our TPN supplies arrived with NO INSTRUCTIONS WHATSOEVER!!!, I think I've got it down. It's nerve wracking to have to inject all the additives to the bag, spike the bag, hook it all up, keep everything sterile, not send anyone into cardiac arrest and whatnot. I may not be the smartest person in the world, but I'm definitely not the dumbest. And presumably they send all kinda of people home with this stuff. It's a sort of comfort...hmmm.
Anyway, we meet with GI next Thursday and, again, presumably they will have the final test results and, hopefully, some sort of direction. Please pray for an answer! A treatable and/or curable answer if we are allowed to be picky.

Here's what we've been up to!

Facetiming with Daddy. We miss him so much!


YouTube Video

As usual, there are no words. Who's daughter is she???

YouTube Video

Sweetest boy. Kids are amazing.

Medical takeover of my poor mom's pantry

1 comment:

  1. Hey my little fighter pilot. You get around pretty well with that refueler. I love you so much! Love, Aunt GG

    "But we have this treasure in jars of clay, to show that the surpassing power belongs to God and not to us. We are afflicted in every way, but not crushed; perplexed, but not driven to despair; persecuted, but not forsaken; struck down but not destroyed; always carrying in the body the death of Jesus, so that the life of Jesus may also be manifested in our bodies."2Cor4:7-10